Tuesday, November 22, 2016

Some days....

I try to be positive, I really do. But when it comes to Riley, some days it's a real challenge. Like the time when he threw up Pediasure all over the place less than a month after getting our new car. Or his feeding tube comes undone and it leaks ALL OVER. ALL NIGHT LONG. That's what I dealt with a few mornings ago. For some reason he won't call me at night if he pees all over or if his feeding tube leaks all over. No matter how absolutely soaked he gets, he never calls me. He just waits for me to find it in the morning. And for some reason it's ALWAYS a school day. You know, when I have to get all 4 kids ready by a certain time or else people miss buses. Kids miss school. And I always know, because the smell hits you about halfway down the hallway. And you want to turn around and go back to bed and pull the covers over your head and wait for someone else to take care of it. But there is no one else. So you continue down that hallway, knowing what you will find. Pediasure all over the wood floor. Sticky, stinky, by now somewhat curdled Pediasure. Just waiting. And of course it's all over him and the bed. Thank God for mattress protectors. When they work. Which, of course, this time it didn't.

I love my oldest son with all my heart, but some days.... Some days I just wish he were "normal."